Person-centred data use in Canadian long-term care
Person-centred data use in Canadian long-term care
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We conducted a case study of a British Columbia-wide survey asking every publicly funded long-term care resident and family about their experiences of long-term care.
We wanted to know if and how the results from the survey were being used to improve care quality in BC long-term care homes.
This is where we tell you what we found.
We conducted a case study of a British Columbia-wide survey asking every publicly funded long-term care resident and family about their experiences of long-term care.
We wanted to know if and how the results from the survey were being used to improve care quality in BC long-term care homes.
This is where we tell you what we found.
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The research
The research
We conducted a case study of a survey done by the British Columbia Office of the Seniors Advocate in 2017 (>19,000 responses) and again in 2023 (> 18,000 responses).
The survey asked residents and family about their experiences of care (e.g., food, privacy, staff respect/responsiveness etc.) in long-term care homes across the province of British Columbia, Canada
We analyzed 53 documents (reports, policy documents, press releases, websites, email communication, and internal documents) and also looked as the old survey records from 2017 and 2023.
We interviewed 24 people across all levels of long-term care between October 2025 and October 2026. We had interviews with staff, residents, families, clinical care leaders, long-term care home leaders, healthcare leaders, and long-term care policy leaders.
We then looked at all that together to answer these questions:
Who was using the survey results?
How were they using them?
and Why were they using or not using them.
The peer-review
The peer-review
This research will be submitted to peer-reviewed academic journal articles (links are in "More Resources") but we wanted to make sure that what we learned is available to all kinds of people in the long-term care sector- not just academics.
This website will be academic research but layed out in a way that anyone can have access to and understand.
We will make sure to put in links to all of our writing so you can look up where we are getting our information.
The academics
The academics
This research has been produced as a partial fulfilment of the requirements for a Doctor of Philosophy (PhD) degree at the University of British Columbia.
This dissertation will be published through the UBC internal system, but if you want to real all 300 pages, we'd be happy to send you a copy!
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